As time slowly inches along my heart grows increasingly heavy. Heavy with fears for Natalie's future, her health, and all that she will endure.
Fourteen days from now we head back to Children's Mercy for more testing. In twenty-three days we meet again with Dr. Igbase to review the results and plan for treatment. In twenty-three days we will learn Natalie's fate. For twenty-three days we wait. For twenty-three days we worry. We have twenty-three days of peace for Natalie.
July 19th we leave for a long awaited vacation with my sister's family. We will journey up to Indiana where we will stay on Lake Michigan. We will relax on the beach (well the kids will, I will be on lifeguard duty) and venture into Chicago to explore Legoland, the Aquarium, and some other classic Chicago attractions. This time will allow us time to regroup as a family and offer us a much needed distraction. It will offer a much needed brief escape from reality.
One day at a time sweet Emily...one day at a time. When our 'little' girls were suffering seizures at age 18 mos. we went thru something similar ...testing...waiting...testing...waiting...and in our case, continuing to exhibit terrifying 'symptoms', seizures. Not just one, both. Simultaneously. I know you're terrified. And I can imagine you're trying to maintain for the rest of the family. It's so difficult. But you will. You must. And everyday you have you need to find joy within. Tom and I and all the girls are praying for you all. As I told your mom, if prayers could cure this little angel (and they just might be able to!!!) we've got her whooped already. We won't stop, Emily, til we hear good news. Sending all our love to you and Chris. Keep the courage girl. They need you...kathy
ReplyDeleteYou and your family are in my prayers!
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